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mamacze · 10-16-2013, 05:36 PM

Hi Raquel,
I was on Herceptin and NED for 8 years. I went on a Herceptin holiday and within a 4 month period developed 2 small tumors on my lungs. I am back on Herceptin, the tumors remain but have not grown. Going off for me was a tough call. After consulting with oncologists at Yale and Sloan, it was clear there was no recommended protocol. Since I have resumed Herceptin, my oncologist says...."if it is working? Don't change anything; not even your underwear....!!"
Good luck with this tough decision.
XO

10-16-2013, 05:36 PM	#19
mamacze Senior Member Join Date: Sep 2005 Location: Madison, Connecticut Posts: 638	Re: How long Should I continue herceptin ? Hi Raquel, I was on Herceptin and NED for 8 years. I went on a Herceptin holiday and within a 4 month period developed 2 small tumors on my lungs. I am back on Herceptin, the tumors remain but have not grown. Going off for me was a tough call. After consulting with oncologists at Yale and Sloan, it was clear there was no recommended protocol. Since I have resumed Herceptin, my oncologist says...."if it is working? Don't change anything; not even your underwear....!!" Good luck with this tough decision. XO __________________ 2001 - Stage 0, lumpectomy, radiation, tamoxifen 2004 - Stage 4, mets to 4 lobes of lungs and liver, lumpectomy, er/pr -, her2 neu+++, Herceptin and Navelbine then Herceptin only. 2005 - Breast Ca vaccinations with the Tumor Vaccine Group in Seattle 2011 - Still Herceptin only and NED 2011, June - STOPPED Herceptin and kicked up my heels! 2012, February - 1 small tumor came back to haunt me in my lungs - back on Herceptin only, tumor stable. 2015, November - tumor on lungs removed (Segmentectomy), back on Herceptin only Received U of W vaccine clinical "booster" Vaccine 2022 On Herceptin and NED continues - WOOT WOOT!