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Ellie F · 10-07-2013, 03:50 AM

Hi
Just wondered what your oncs reasoning for coming off was? I have debated the same issue with my own oncologist but its problematic as there is very little research out there. My oncs current view is to keep his stage 4 patients on herceptin for 5 years if they remain NED then stop! There are a few women on the board who have stopped herceptin but after a much longer time and have stayed NED. There are others however that have stopped and the cancer has returned. This seems to be what my own onc had found judging by his answers. The problem is all this feels like such a lottery!

Ellie

10-07-2013, 03:50 AM	#4
Ellie F Senior Member Join Date: Feb 2009 Posts: 1,526	Re: How long Should I continue herceptin ? Hi Just wondered what your oncs reasoning for coming off was? I have debated the same issue with my own oncologist but its problematic as there is very little research out there. My oncs current view is to keep his stage 4 patients on herceptin for 5 years if they remain NED then stop! There are a few women on the board who have stopped herceptin but after a much longer time and have stayed NED. There are others however that have stopped and the cancer has returned. This seems to be what my own onc had found judging by his answers. The problem is all this feels like such a lottery! Ellie