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KirisMum · 04-23-2013, 06:13 AM

Amanda, my heart goes out to you. When will they scan to see if the Abraxane is working? There are so many different kinds of tumors, that might just be the combo you need. You say you've only had a couple of taxanes--was taxol one of them?

Interesting that you have a P53 mutation - is it BRCA 1 or 2? Kiri has a mutation, a p.D7E variant that she inherited from my husband. Its "clinical significance remains unclear." I wish they would do more investigation along these lines. The kevetrin trial sounds promising.

Keeping you in my heart and prayers. With your energy and great physical condition, you remind me of my daughter, and also a dear friend who has been living strong with Stage IV for 25 years. Always keep up hope.

04-23-2013, 06:13 AM	#6
KirisMum Senior Member Join Date: Nov 2010 Posts: 186	Re: More Progression Amanda, my heart goes out to you. When will they scan to see if the Abraxane is working? There are so many different kinds of tumors, that might just be the combo you need. You say you've only had a couple of taxanes--was taxol one of them? Interesting that you have a P53 mutation - is it BRCA 1 or 2? Kiri has a mutation, a p.D7E variant that she inherited from my husband. Its "clinical significance remains unclear." I wish they would do more investigation along these lines. The kevetrin trial sounds promising. Keeping you in my heart and prayers. With your energy and great physical condition, you remind me of my daughter, and also a dear friend who has been living strong with Stage IV for 25 years. Always keep up hope.