HER2 Support Group Forums - View Single Post

vickie h · 03-05-2009, 01:37 PM

Hi Ellie,
I just mailed off a bottle of Tykerb to a woman back east who couldn't afford it. I wish I had saved that and mailed it to you, but maybe there are others on this site who have some and we can collect it and mail it to you. I don't know what the legal ramifications would be (mailing internationally) but it is worth a try. I'll do some research and see what I can find out. Also, if you call the drug company directly, they have a Tykerb Cares program that will fund your drug (provided your Onc will write you a script for it) if you can't afford it. I'll get back to you after the week-end and see what I can come up with for you. Hang in there, sweet sister, help is on the way. Love, Vickie

03-05-2009, 01:37 PM	#2
vickie h Senior Member Join Date: Jun 2006 Location: san luis obispo, ca Posts: 1,150	Hi Ellie, I just mailed off a bottle of Tykerb to a woman back east who couldn't afford it. I wish I had saved that and mailed it to you, but maybe there are others on this site who have some and we can collect it and mail it to you. I don't know what the legal ramifications would be (mailing internationally) but it is worth a try. I'll do some research and see what I can find out. Also, if you call the drug company directly, they have a Tykerb Cares program that will fund your drug (provided your Onc will write you a script for it) if you can't afford it. I'll get back to you after the week-end and see what I can come up with for you. Hang in there, sweet sister, help is on the way. Love, Vickie __________________ Love and Hugs, Vickie Life's not about waiting for the storm to pass, It's about learning to dance in the rain. Feb 04 IBC IIIC/IV er-/pr- her2+++ 3/04 TCH X4 7/ 04 MRM 9/04 Taxol/herceptin wkly 1 yr 33X rads 11/04 skin mets 33x rads,10/05 Avast/Herc. 11 mos. 8/ 06 PET mets lymphs, neck 9/ 06 Navelbine/herceptin 11/ 06 PET NED 2/ 07 skin mets, 4/07 Xeloda, 5/07 add Tykerb 2/ 08 Tykerb failed. Doxil /Herceptin 6 months 8/08 PET skin mets, 8/08 Abraxane/Avastin 11/ 08 PET prog., skin mets 1/09 PET/CT progress, 1/09 Ixempra, 2/09 add Xeloda and low dose Naltrexone 2/09 off Ixempra/Xeloda 3/09 navelbine/herc/cytoxin 4/09 PET shows regress.7/09 start Topotecan. Failed. 8/09 extensive mets rgt brst, back and torso. starting Pazopanib clinical trial.