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Old 07-28-2014, 03:32 PM   #13
Adriana Mangus
Senior Member
 
Join Date: May 2006
Location: California
Posts: 668
Re: Wanting to encourage the new her2 sisters.

Mary Jo!!!!!!!!!

Glad to hear from you!

Don't be a stranger, even if you are cured we need you on the site, you have been through this before and we need breast cancer survivors like you, to encourage and provide their own input during the chemo treatments, medical appointments, diet, side effects from chemo and all that jazz to our new sisters.

A lot of us continue visiting and helping others with our own experiences during this ordeal. There is no cure for some of us, but treatments for stage IV cancer is better with new drugs and the continued studies for better treatments for breast cancer.

Hope you are enjoying the weather in Wisconsin, is beautiful this time of the year, my husband and I visited this area a few years ago and stayed at Lake Geneva at the original Playboy mansion. We had a great time.

So happy for you Mary Jo. May God provide you with the energy you need to take care of yourself and now enjoy your grandchildren, you are truly blessed. I totally agree with you - the diagnosis of breast cancer has made me a better and happier person, couldn't be more grateful to God for it, it has made appreciate Life in all of its splendor and that's something not too many people will ever be able to enjoy!!!


Grateful for everyday!

Sending you a BIG cyber HUG.

Adriana
__________________
1994 - rt brst, .lump, underarm node dissection,chemo+rad 1.2 cms, Grade 3.
28 nodes neg
Er,Pr, Positive HER2 status unknown
2003- Recur to rt lung.July 16 ( B-Day!)
Her2+++ Er,Pr, Negative
2003 - Aug04--Navelbine + Herceptin
2004- 2007--
NED - Herceptin, only
2007 Feb-April Xeloda added to hereceptin
2007-May Back on Navelbine+Herceptin
2008-Feb-Mar 15 Ses Rad to Rt. Lung
2008- Oc 17 Add Tykerb to Herceptin
2009- June-- Discont Tykerb
2009 July 7--Current Taxol + Herceptin
2009 Dec--Discontinued treatment due to progression. Looking into cyberknife.
2010-Aug Accepted to TDM1, no SE, except liver count went up.
2010-2011 September got kicked out of the trial, due to a small spot found on lung.
2011- 2012 September thru early 2013 on Herceptin
2013- March Bone density shows small spot on 5th rib.
2013 - April 4th appt with onc. will post after discussing course of treatment.
2013-March-April Cyber knife to brain and radiation to rib. Chest --base line before chemo-CT-Scan stable for lung issue. CA2729 Normal.
2013 April Herceptin- TDMI
2013 Sept Herceptin + Perjeta . CA2729 within normal range. Brain and Pet scans October 31st. will post results.
2013 October Brain MRI- mixed response. Will see Onc/rad on Halloween.
2013 October/November Brain-MRI nothing new. Repeat MRI next year in May.

2013 December Continue Herceptin and Perjeta. Stable at the moment.
2014 February Brain MRI -clear!
2014 January Added Taxotere to Perjeta+Herceptin.
2014 March Stopped chemo-chest ct-scan next.

2014- March Scans shows tumor's larger, CA2729 higher. Discontinue Herceptin.
2014 April Perjeta+ Halaven
2014 April CA2729 went down 60 points after one cycle. Cough does not want to go away.
2014 June Continue on Perjeta + Halaven-- no more cough. Stable
2014 June Back on Herceptin + abraxane
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