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Old 02-20-2012, 09:12 PM   #11
Lettik
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Join Date: Nov 2011
Location: San Diego, California
Posts: 16
Re: Herceptin and chills/joint pain?

Lauriesh,
I was sooooo happy to hear the treatment is working and you are NED for almost a year. Kudos!!

Great suggestion from Lani and it seems it would be worth a try.

Do you all get "premeds" before Herceptin treatments? I get (2 tylenol, and a benedryl).
Just my opinion, but I have no faith that tylenol works for anything. Too much can damage the liver. Scary for those of us with liver met. The benedryl just makes me tired.
Everyone is different.

Take care
Lettik
__________________
6/09 I found lump in left breast
7/09 & 8/09 Confirmed DCIS in breast and lymph nodes
9/09 Left breast mastectomy incl lymph nodes. er-/pr-, HER2+, Stage 3A.
10/09 Received phone call to schedule my liver biopsy. Stage IV extensive liver mets (!) ER/PR- Her2+++s
11/09 11/Port surgery
11/09 Weekly Taxol & Herceptin.
2/10 Completed 9 rounds -neuropathy in feet.
2/10 CT scan showed NO CHANGE.
3/10 PET scan came up NED.
4/10-10/10 Continued on Herceptin, 3 week cycle.
11/10 Blood test reveals Liver enzymes are high. CT, suggests progression
12/10 Changed doctors. TDM1 Trial or Tykerb/ Xeloda?
1/11 Tissue expander-could not qualify for trial.
2/11 -5/11 Tykerb/Xeloda -neuropathy -not working.
8/11Pulmonary Embolism -Now on daily shots
5/11-10-11 Everolimus & Navelbine &Herceptin trial Removed- Pul Emb, liver progression &fatty
10/11 -current, 3 wk Herceptin plus Tykerb
12/11- Abcess and infection upper lip- stopped Tykerb
01/12 CT Shows no progression in liesions, back on Tykerb
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