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Old 12-23-2009, 11:19 PM   #1
Senior Member
Join Date: Aug 2008
Posts: 327
Bilateral mastectomy support group

I had bilateral mastectomies in Sept. 2008. Though only one breast had DCIS/IDC, I did not trust either one anymore. I feel I made the right decision for me. But it was a difficult decision.

I would like to hear from other women who have had bilateral mastectomies. I am finding that I can't wear some of the blouses or dresses that I used to wear. I wear prosthetic breasts and am kind of getting used to it, but they are a hassle and hot in the summer, but I will not go braless!

Do any of you have ideas, suggestions, or particular brands of bras that you like?

For those of you who have prosthetic breasts, are you considering implants or are you ok with what you have now?

Are the saline implants better than silicone? Are implants painful?

I don't have a cancer breast support group in my area or anyone to talk to who knows how this feels, emotionally and physically.

Would love to hear from you, thanks,

Three years and 5 months NED
Dx: Aug 2008 right breast IDC with 50% of tumor DCIS, Stage II or IIA, tumor size: 2.1 cm
Grade 3
8/9 Richardson/Bloom test
ER+ weakly positive
Alred Score: 4 (suggesting I would strongly benefit from hormone therapy)
HER2 positive +++
No vascular invasion
No lymph nodes involved
Surgery: Sept. 9, 2008 -Modified radical mastectomy, right breast. I chose to have a simple mastectomy on the left. Began Taxotere/Carboplatin/Herceptin November, 2008. Finished T/C March 2009. Finished #16 Herceptin Sept. 09. AI's and Tamoxifen made me sick. Began natural Tamoxifen which is Quercetin, I3C and a combo of other supplements. I am also a DES Daughter. There is now a link between DES exposure in utero and breast cancer!
DianneS is offline   Reply With Quote