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bejuce · 12-29-2014, 01:27 PM

Hi HER-2ers,

I have some questions about brain mets to those of you that know about and follow the literature:

1. What is the likelihood that one has brain mets but no other mets?
2. Has anyone found brain mets without having a headache as a symptom?
3. What is the likelihood of a brain met finding 5 years post diagnosis?

I ask because I had a vertigo episode when moving my head from one side to another in my pillow the other morning and am trying to determine whether this is an isolated incident accompanied by a feeling of a heavy head and a cold that I feel is trying to attack me, or whether I should bring this up with my doctors.

Thanks!

Bejuce

12-29-2014, 01:27 PM	#1
bejuce Senior Member Join Date: May 2009 Posts: 510	Question on brain mets Hi HER-2ers, I have some questions about brain mets to those of you that know about and follow the literature: 1. What is the likelihood that one has brain mets but no other mets? 2. Has anyone found brain mets without having a headache as a symptom? 3. What is the likelihood of a brain met finding 5 years post diagnosis? I ask because I had a vertigo episode when moving my head from one side to another in my pillow the other morning and am trying to determine whether this is an isolated incident accompanied by a feeling of a heavy head and a cold that I feel is trying to attack me, or whether I should bring this up with my doctors. Thanks! Bejuce __________________ ER+ (30%)/PR-/HER-2+, stage 3 Diagnosed on 02/18/09 at 38 with a huge 12x10 cm tumor, after a 6 month delay. Told I was too young and had no risk factors. Found swollen node during breastfeeding. March-August 09: neo-adjuvant chemo, part of a trial at Stanford (4 DD A/C, 4 Taxotere with daily Tykerb), loading dose of Herceptin 08/12/09 - bye bye boobies (bilateral mastectomy) 08/24/09 - path report shows 100 % success in breast tissue (no cancer there, yay!), 98 % success in lymphatic invasion, and even though 11/13 nodes were still positive, > 95 % of the tumor in them was killed. Hoping for the best! September-October 09: rads with daily Xeloda 02/25/10 - Cholecystectomy 05/27/10 - Bone scan clear 06/14/10 - CT scan clear, ovarian cyst found 07/27/10 - Done with Herceptin! 02/15/11 - MVA-BN HER-2 vaccine trial 03/15/11 - First CA 15-3: 12.7 and normal, yay! 10/01/11 - Bone scan and CT scan clear, fatty liver found now on Tamoxifen and Aspirin