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Old 04-19-2013, 11:56 PM   #4
Pamelamary
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Join Date: Apr 2012
Location: Melbourne, Australia
Posts: 494
Re: Scans and update-

Sorry that you are feeling down, specially when the results all sound good. I think the women on this site are ample proof that there is no predicting outcomes. Living with Stage IV disease means we are aware of its seriousness, but are entitled to hold on to the positive in our lives. I wish doctors would learn to speak in terms of the possible, the probable, but also the exceptions which give us hope. Your onc seems to have the bedside manner of a flatworm!
Personally I am avoiding the anti-depressants, not wanting to add more "poisons" to the mix. When i feel down, I try to immerse myself in something that gives me pleasure - exercise, walking or reading during the day, or music in the dark hours.
But, whatever works for you.....
Warm wishes.... Pam
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Diagnosed 2004: Lumpectomy - 2 tumours, both grade 1 infiltrating duct carcinoma, about 12mm. ER+,
C-erbB-2 status 3+.
Clear margins, no nodal involvement.
Radiotherapy, i year Tamoxifen, 4 years Arimidex.
Rediagnosed 2012: Multiple bone metastases.
3/12: began on Marianne trial - T-DM1 + Pertuzamab/Placebo.
5/12:Unexpected development of numerous bilateral liver mets. Came off trial.
Started Docetaxol/ Herceptin + Zometa.
8/12:Bones stable +major regression in liver (!)
9/12:Can't take any more Docetaxol! Start on Herceptin and Tamoxifen. Cross fingers!
Changed to Denosumab.
11/12: Scan shows stable - yay!
11/13: Still stable :-) !!!
1/16: All stable, but lowered calcium, so switched to Zometa 3 monthly.
2/19: Happily still stable on Herceptin, Letrozole and 3 monthly Zometa.
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