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Re: Start, stop, start, stop
Vicki,
When Herceptin alone stopped working for me, Dr Slamon added Tykerb. He started with 4 pills but I had a severe allergic reaction--hives all over my body. So he lowered me to three pills a day which I was on for 3 1/2 years. But I think it only was working for 2 1/2 years based on all my problems before my second reoccurrence was finally detected on scans in June.
I had diarrhea the entire time I was on Tykerb. Somedays it was worse than others but always present. I took lots of Lomotil, almost everyday. I wish I knew a magic formula to stop this side effect but I never found one. I hope someone else on this site has one for you.
Nancy
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