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Lori R · 10-06-2012, 06:31 AM

Vicki,
So sorry to hear of the difficulties you are having with the X/T. There are others on the board with my info than myself so I hope they quickly chime in.

I was not on X/T, but my onc added Tykerb to Herceptin hoping that would do the trick. (it didn't). I faced a serious case of the trots and it REALLY took in out of me (no pun intended).

I was able to get it under control with large doses of Immodium. Has your onc. informed you have how much you can take? I was amazed at how much they recommended.

If Immodium doesn't get it under control, there are prescription drugs. Are you on one of those? If not, request it. I could not keep myself properly hydrated which negatively impacts so many functions in our system.

I can't add anyhting for the challenging Xeloda impacts.

I certainly hope your efforts pay off!!! Maybe push for an earlier than usual scan, so that you can move on if this isn't the ticket.

Lori

10-06-2012, 06:31 AM	#2
Lori R Senior Member Join Date: Jan 2008 Location: Evergreen, Colorado Posts: 454	Re: Start, stop, start, stop Vicki, So sorry to hear of the difficulties you are having with the X/T. There are others on the board with my info than myself so I hope they quickly chime in. I was not on X/T, but my onc added Tykerb to Herceptin hoping that would do the trick. (it didn't). I faced a serious case of the trots and it REALLY took in out of me (no pun intended). I was able to get it under control with large doses of Immodium. Has your onc. informed you have how much you can take? I was amazed at how much they recommended. If Immodium doesn't get it under control, there are prescription drugs. Are you on one of those? If not, request it. I could not keep myself properly hydrated which negatively impacts so many functions in our system. I can't add anyhting for the challenging Xeloda impacts. I certainly hope your efforts pay off!!! Maybe push for an earlier than usual scan, so that you can move on if this isn't the ticket. Lori __________________ 2007 Oct - Diagnosed - Stage IV 5 c.m. IDC - Left Side er/pr- Her2+++ Node + 2/14 - Single Liver Met Double Mastectomy Nov - Begin T+H 2008 Feb-Complete 6 cycles- T&H- NED March - Continue - Herceptin Only April - Rads for 6 weeks 2009 Continue Herceptin - Continue NED April - Recurrance- 3 cm. Liver Met May - Cryosurgery June - November - Abraxane + Herceptin Aug - PET/CT - CTC = 0 Back to NED 2010 January - Continue NED July - Recurrance - 3 cm Liver Met CTC=1 August - Cryosurgery #2 August - November Navelbine November - Back to NED - End Navelbine 2011 Feb - Recur - 4 cm Liver Met - Same Left Lobe March Surgery it is -Couldn't get a clean margin July - Confirmed continued liver involvement August - Begin Herceptin + Tykerb October - Mixed results from H+T Add Abraxane + H + T - Nov - April 2012 January PET Scan - It's working!! April - Back to NED July - Recurrance August - Begin TDM-1 Trial (Taxol + TDM-1)