|
Re: Anxiously Waiting
Heres the latest on Barbs situation, we met with her Dr. Monday afternoon. Right now the FDA is asking for a written statement from Genentech stating Barb may have the TDM-1. We already know the Dr. has talked to Genentech and they said yes but apparently thats not prim and proper to the FDA GRRRRR. We also learned that Barbs white count is slightly low so if we had the TDM-1 today she couldnt have it and her Dr. will be out of town for 1 week next week so it will be at least the 20th before she can get TDM-1 if all goes well. Shes scheduled for Navelbine next week after a week off but were told if the TDM-1 is approved to pass on the Navelbine and clean out so she can have the good stuff when he gets back.
__________________
Diag. Aug. 2010
ER- PR- Her-2 +++ Stage IV
Mets to T 6th Vertabrae
Radiation to spine
10/23/10StartNavelbine
11/19/10 Port installed
11/22/10 Started 2nd cycle
1/10/11 Finished 2nd cycle
1/24/11 Herceptin Only
3/7/11 progression, start Taxol/Herceptin
4/18/11 Skin mets appear increase treatments to weekly
rash spreads to right breast
7/5/11 enroll in TDM-1 study
7/29/11 randomly assigned Tykerb drop out of trial and start Tykerb /Herceptin no Xeloda skin mets gone Tykerb working
1/31/12 Skin mets return add Xeloda
5/9/12 Stop Tykerb skin mets back
5/17/12 Return to Navelbine/Herceptin
6/26/12 start process for TDM-1 compassionate access
8/28/12 Start TDM-1
10/9/12 third TDM-1 no response yet
10/23/12 Start Haloven
1/17/12 Start Perjeta/ Herceptin/Taxotere
|