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Old 01-12-2022, 01:19 PM   #1
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Pamelamary's Avatar
Join Date: Apr 2012
Location: Melbourne, Australia
Posts: 492
The party's over?

Hi everybody,
After nearly 10 years stable on Herceptin and Letrozole, it seems the beast has struck again. It was no surprise when a tumour in the brain was discovered, but it isn't a breast met. No such luck! I have Glioblastoma Multiforme, which is a totally shitty diagnosis, with even shittier treatment to come.
However, having lived in Cancerville for so long, I am feeling rather "Zen" at the moment. The old cliches - 'one day at a time', and' listen to your body" are proving useful.
Frenetic activity - so many appointments, with stereotactic radiation and brain directed chemo. Ever the optimist, I have booked a trip to Italy to celebrate my 70th birthday in September... Oh, and my son and his partner have come over from New York to spend time with me, which makes me VERY happy.
Best wishes to all for the new year...... Pam
Diagnosed 2004: Lumpectomy - 2 tumours, both grade 1 infiltrating duct carcinoma, about 12mm. ER+,
C-erbB-2 status 3+.
Clear margins, no nodal involvement.
Radiotherapy, i year Tamoxifen, 4 years Arimidex.
Rediagnosed 2012: Multiple bone metastases.
3/12: began on Marianne trial - T-DM1 + Pertuzamab/Placebo.
5/12:Unexpected development of numerous bilateral liver mets. Came off trial.
Started Docetaxol/ Herceptin + Zometa.
8/12:Bones stable +major regression in liver (!)
9/12:Can't take any more Docetaxol! Start on Herceptin and Tamoxifen. Cross fingers!
Changed to Denosumab.
11/12: Scan shows stable - yay!
11/13: Still stable :-) !!!
1/16: All stable, but lowered calcium, so switched to Zometa 3 monthly.
2/19: Happily still stable on Herceptin, Letrozole and 3 monthly Zometa.
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