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mamacze · 06-17-2009, 07:19 PM

Hi Lisajean,
We are so pleased you have joined us.
What a kick in the pants you have had; first the breast cancer; next the chemo, then the chest pain and to top it off, an oncologist who seems to forget what day it is!
How hard to regain control when it seems like your life is spinning out of control!
But here you are, climbing on the tiger - I have been on Herceptin for 5 years, chemo for 1 - I remember when I started having chest pain - it was reflux - and I also think in retrospect maybe the chemo doing its thing in my lungs - nonetheless - you don't want to fool around with symptoms like chest pain - so you are doing the right thing going to a cardiologist. Medical protocol for anyone on Herceptin is a MUGA or similar heart scan every 6 months.
Now, it seems like you have had it with your oncologist and you two have hardly finished your first dance. My vote is that you move on to another dance partner. Get an oncologist you feel comfortable with - as you will be in this for the long haul.
Good luck and please keep us posted on how you are doing!
Love Kim from CT

06-17-2009, 07:19 PM	#23
mamacze Senior Member Join Date: Sep 2005 Location: Madison, Connecticut Posts: 638	Hi Lisajean, We are so pleased you have joined us. What a kick in the pants you have had; first the breast cancer; next the chemo, then the chest pain and to top it off, an oncologist who seems to forget what day it is! How hard to regain control when it seems like your life is spinning out of control! But here you are, climbing on the tiger - I have been on Herceptin for 5 years, chemo for 1 - I remember when I started having chest pain - it was reflux - and I also think in retrospect maybe the chemo doing its thing in my lungs - nonetheless - you don't want to fool around with symptoms like chest pain - so you are doing the right thing going to a cardiologist. Medical protocol for anyone on Herceptin is a MUGA or similar heart scan every 6 months. Now, it seems like you have had it with your oncologist and you two have hardly finished your first dance. My vote is that you move on to another dance partner. Get an oncologist you feel comfortable with - as you will be in this for the long haul. Good luck and please keep us posted on how you are doing! Love Kim from CT __________________ 2001 - Stage 0, lumpectomy, radiation, tamoxifen 2004 - Stage 4, mets to 4 lobes of lungs and liver, lumpectomy, er/pr -, her2 neu+++, Herceptin and Navelbine then Herceptin only. 2005 - Breast Ca vaccinations with the Tumor Vaccine Group in Seattle 2011 - Still Herceptin only and NED 2011, June - STOPPED Herceptin and kicked up my heels! 2012, February - 1 small tumor came back to haunt me in my lungs - back on Herceptin only, tumor stable. 2015, November - tumor on lungs removed (Segmentectomy), back on Herceptin only Received U of W vaccine clinical "booster" Vaccine 2022 On Herceptin and NED continues - WOOT WOOT!