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Re: Steroid/herceptin withdrawal questions for you!
What Denise said...went through it every time I dropped my dose in my weaning process. Even after being completely off them now for a few weeks, I don't feel up to par. My chemo nurse told me it could take 3-5 months to feel back to "normal", whatever my new normal is at this point. I've been off the dexa now for six weeks maybe, and I already notice a HUGE difference as far as energy and muscle weakness, etc. Its getting a little better every day. So hang in there...its going to get better! 
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Diagnosed in October 2011 Stage IV with metastasis to liver.
January 2012 after double mastectomy, started taxotere, carboplatin and herceptin.
Clear.
December 2012 was diagnosed with five brain mets, and had whole brain radiation.
Around July 2014 two mets in brain, one a residual spot and one new one growing in size. Received Cyberknife on both areas
Clear/NED
April 2015 remain NED
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