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Re: Steroid/herceptin withdrawal questions for you!
Jill,
I am so sorry you are having these problems. Were you taking the Decadron for brain swelling? When I had only Herceptin and Tykerb (I was in a study), I did not have any steroids or nausea meds.
Decadron did cause me to develop cataracts which had to be delt with after completing all treatment. Steroids are wonderful medications, but they do come with a price. I had none of the symptoms you are having when I came off Herceptin and Tykerb. My diarrhea just went away. I suspect you are having problems related to the Decadron. These will lessen with time. Good luck.
Sandra
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Diagnosed: 7/25/08 ~ age 63, no family history
Surgery: 8/14/08 Bilateral mastectomy; tumor left breast, node dissection; right prophylactic with expanders: 1/12/10 latisimuss dorsi flap on left side: 9/22/10 implants in
Pathology Report: ER/PR-; HER2+ (3+); Grade 3, StageIII; 3cm tumor plus 21/21 lymph nodes positive; 5cm DCIS
Chemo: A/C; Taxol/Herceptin/Tykerb; phase II study at Mayo adding Tykerb for early stage
Radiation: 25 rads
Vaccine: Walter Reed GP2/AE37 vaccine study ~ last booster 9/17/2012
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