HER2 Support Group Forums - View Single Post - Steroid/herceptin withdrawal questions for you!

dearjilly · 05-17-2013, 06:34 AM

Hi wise ones,
I need your expertise.

My Situation:
- tapering off dex 1mg per day (second time doing this, but having a worse time this time around)
- last herceptin was in March (off due to low EF and probably will not go back on)
- on heart meds (just started a new one. So new, I don't even know the name of it *blush*)
- I'm on ramipril for my heart as well and tamoxifen

SO...... I've been feeling like poop. I feel like I'm in chemo again. My homeostasis is WAY off. I feel like I've been boozing outside all day long. Or maybe I feel like someone has punched me in the face, and injected my eyeballs with sand or kitty litter. I'm tired. My brain feels dirty, and most of the time I just want to say "HUH?" lol

Am I feeling this way because of the drugs and withdrawing from them mixed with a side of estrogen sucker and blood pressure downers?

Help from you:

I'm looking for my peeps out there to tell me their side effects from coming off herceptin and decadron.

Any help would be awesome!

Thanks, Jill xo

05-17-2013, 06:34 AM	#1
dearjilly Senior Member Join Date: Feb 2012 Location: Ontario, Canada Posts: 115	Steroid/herceptin withdrawal questions for you! Hi wise ones, I need your expertise. My Situation: - tapering off dex 1mg per day (second time doing this, but having a worse time this time around) - last herceptin was in March (off due to low EF and probably will not go back on) - on heart meds (just started a new one. So new, I don't even know the name of it blush) - I'm on ramipril for my heart as well and tamoxifen SO...... I've been feeling like poop. I feel like I'm in chemo again. My homeostasis is WAY off. I feel like I've been boozing outside all day long. Or maybe I feel like someone has punched me in the face, and injected my eyeballs with sand or kitty litter. I'm tired. My brain feels dirty, and most of the time I just want to say "HUH?" lol Am I feeling this way because of the drugs and withdrawing from them mixed with a side of estrogen sucker and blood pressure downers? Help from you: I'm looking for my peeps out there to tell me their side effects from coming off herceptin and decadron. Any help would be awesome! Thanks, Jill xo __________________ [ Feb 2013 - NED Mar 2013 - thought I had progression, watching brain. April 2013 - GOT MARRIED!!!! May 2013 - looks like no progression, but necrosis and bigger. Oct-Dec 2013 - Avastin tx Nov 2013 - MRI shows necrosis shrinkage!!!! Jan 2014 - Lepto Mening. disease found Feb 2014 - WBR March - BLAHHHH April 2014 - Liver mets found April 2014 to present - Chemo again, whooohoo. Fun! July 2014, scans look good. Stay on Perjetand hercertin. Nov. 2014 more lepto-mening disease more WBR. Feb 2015 more lepto-mening disease in spine and neck. More radiation. Start on TDM1 no more Perjeta stay on herceptin March 2015 more radiation in my thoracic area, more lepto-meningial disease April 2015 trying to walk again. [/SIZE][/FONT]