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Old 03-05-2011, 05:08 AM   #1
Pam P
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Join Date: Sep 2005
Location: MN
Posts: 731
if had or brain mets please share your knowledge

new to this week. brain mets mri on Thursday showed 6 -8 spots they could see. I only know size and location of largest 2.6 cm in cerebellum. One is located in a spot that potentially cause blocking fluid to brain. They said risk was slight but if it started to get sever headache and dizzy i should go do ER & might need neuosugery.
uI've had 2 out of 20 sceduled = I asked about gamma knife and told not for me=it would only focus on 1 met and others wouldn't get treated.

questions it have:

What are my best outcomes here given the number of mets? wbr doesn't work -end of road. shrink some/all then what ? all disappear - yeah = they what?

On rhia site I've read about several tx - wbr, gamma knife, cyber knife, IMRT .steroactic sp something..VMAT, maybe others==== could some one explain them to me oe lead me to a helpful link - i really appreciate it.

Will i see any relief in smyptoms during rads or does i take a couple months to know. I've heard no follow up scan is done right after wbr because its too soon to see changes. How long do you have to wait?

Already the decadron had relieved some headache and dizzy feeling. Do people drive themselves? Go to work? Not comfortable driving yet but hope to try someday next week

I see tje rad doc again Tues. what questions should I be asking him:?

Im totally out of my knowledge zone in this whole area.

thank so much. pam
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Pam
6/01 IBC er+ her2+stage IIIb; mastecomy
7/01 AC, taxol; radiation
2/02 tamoxifen
9/02 stage IV bone mets femara
1/03 taxotere/herceptin/aredia
6/03 herceptin, aredia & faslodex
1/04 navelbine, herceptin, aredia
2/05 herceptin/aredia
7/05 xeloda/herceptin/aredia
3/07 xeloda/tykerb/aredia
5/08 taxol/avastin/aredia
2/09 gemzar/herceptin/zometa
7/09 Taxol/Carbo/Herceptin, zometa
10/09 navelbine/herceptin & zometa
2/10 herceptin & tykerb & zometa
4/10 add xeloda &aromasin
10/10 dx with dermatomyiositis triggered by cancer
11/10 restart herceptin, tykerb, zometa
12/10 surgery-place rod in R femur to stabilize bone
1/11 radiation to R femur - 20 tx
2/11 2nd surgery - rod in Left femur
2/11 tx eribulen -- suspended dx brain mets
3/11 brain mets wbr 20 tx
4/11 halaven; discontine 8/11 not working
8/11 radiation to left femur 20 tx'
8-9/11 rad to lower spine
9/11 abraxane/herceptin/zometa
9/12 xeloda/herceptin/zometa
12/12 ablation of liver
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