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Old 03-30-2012, 04:21 AM   #3
Becky
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Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
Re: IBC after initial dx of IDC?

I agree with the skin mets. Don't let your mind go to a dark place.

However, I will make some comments but it is just me - a layman and NOT a doctor. This is only my opinion on the difference between skin mets and IBC.

One thing is that you don't have your real breast to judge but usually IBC is diagnosed from the get go because there is a true biological difference between IBC and IDC. There is a reason it behaves as it does - swollen, red, hot breast. Dimpling, orange peel skin, inverting nipple. Some "dots" or small pimples but maybe not everywhere.

Skin mets is more a recurrence. Like you said, where was the cancer going to go? It is a tumor or large pimple. If there is redness around it, it has a raised edge versus it being smooth between the red and normal colored skin. It has a more "lesion" looking appearance.

Besides some chemo and surgery, I don't know if your doctor mentioned radiation. I didn't read your signature to see if you had radiation already but if you did not, you should ask and have a consultation with a radiation oncologist.

I am so sorry that you have to go through this scare but a local recurrence is more than doable and survivable. Unfortunately, you will have to work harder (have more treatment) but I know you can do it.
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Kind regards

Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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