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Old 06-03-2015, 07:39 AM   #8
laura4252
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Join Date: Jan 2011
Location: Colorado Springs, Colorado
Posts: 18
Re: important-- turning her2+ Stage IV into chronic treatable disease

I've been Stage 4 since 2009, with mets to the lungs in 2011. 2014 I noticed heaviness in upper respiratory area, then in April I decided I needed oxygen to deal with shortness of breath. I was on oxygen (I was consistently below 90, in the mid 80's), so I went on oxygen 24/7--Very strange for me since I've always been extremely active. I decided to try Abraxane after years of saying NO to non-targeted chemo. Within three weeks I was completely off oxygen, but the side effects of the chemo are huge, and I'm not inclined to do Cycle 3 and 4......PET/CT on June 12.
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2005: DCIS Stage 0, Right breast, High grade, lumpectomy, radiation, no mastectomy 2009: Diagnosed Her2 new+++, Herceptin only (toxic reaction to Taxotere). Great response to Herceptin 2011 lung mets 2012 tried several targeted chemos- none worked
2013 TDM1- good job resolving some lung mets 2014 Took a treatment break, Oct. Allergic reaction to Doxil 2015 Herceptin & Perjeta
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