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Astrid,
Although I'm ER/PR- and HER2+ I keep reading all the posts. I'm surprised that your oncologist doesn't do any tests unless you are having symptoms. My onc will order scans, MRIs, PET/CT scans whenever I ask. I had a PET/CT scan in May 06 right before my surgery and I asked my onc for a PET/CT in July just to make sure everything was ok. Thankfully scan was clear. And last week I asked for an HER2 serum test.
Also had a vaginal sonogram when I was having pain in the groin area - clean. An MRI when I was having headaches - clean except for a sinus infection.
If I were you, I'd insist on a PET/CT scan. With your history I don't know how the onc could refuse you. Best of luck to you.
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Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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