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Old 05-27-2010, 10:47 AM   #15
Ellie F
Senior Member
 
Join Date: Feb 2009
Posts: 1,526
Re: Please let me know what you think i should do next

Sorry forgot this bit. If the biopsy turns out to be her 2 again could you persuade them to still give you herceptin on the NHS then request genentech provides you with 3 months free trial of tykerb? They offered this to the Government some time ago with the proviso that the NHS only pick up the bill if it works.
My own experience when I discussed this option with the onc was that they were not aware of this protocol so I told them about Nancy's recommendations from Dr S!
They were very sceptical that this would be effective without chemo but I added that she was living proof!!
Ellie
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