[Westcoastgirl]

Hi Elizabeth,

I have found that there are a multitude of side effects to each and every drug we are prescribed and most often the list is very, very long. I have had a few strange side effects to the medications they have given me and sure enough way at the end of the list is my symptom and then again sometimes it's not there at all, (for example I had a rash after radiation and it was suggested here on this site that I had radiation recall. My onc. told me that was impossible as there were no documented cases of it when on Femara, only Tamoxifin. Well after many hours of searching I did indeed find a documented case of radiation recall on Femara.) I think that there are most likely other women that have had your hormonal side effect to Herceptin but the timing of your post or the luck of the draw has just simply kept those women from seeing your post or replying to it. Before you give up on Herceptin I would try your counselor as many suggest. You have been through quite a battle this past year and as I said the mind is one powerful entity....but also I would talk to your onc. about possibly substituting another drug that is known to afford a similar protection; for example Tykerb or perhaps some part of the T-DM trials or the vaccination trials, or.... Of course I do not know what I am talking about but it seems to me when I read the different trial reports there is more than one way to skin the Her2 cat. Best of luck! Carolyn