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chrisy · 02-08-2012, 02:34 PM

Sheila,
Well yes, get that next 10 year plan in place! I know you've been waiting so long just to get answers about what's going on, so you could know what you're dealing with. You were correct in your guesses - and now you can move forward.

There is good news in there tho. Good news that systemically things are still under control. Good news that you can now blast the local crap and get some relief. Good news, I think, that you can take a break from the Gemzar and hopefully regain your strength (and some of those darned "counts") or at least hold your own with the rigors of radiation.

I REALLY like the idea of getting a place to stay up there. I know you hate being away from your family - they are so much your lifeline - but to do that commute daily in the winter sounds nasty, especially if you are not feeling well. I assume there is public transportation to Rush, so there might be many options. With gas, wear and tear on your car, you might not be that much more out of pocket.

You know you would be welcome at my sister's house, but the Yorkie (and moody 15 year old!) might just push you over the edge!

Let me know if I can help you in any way. You know you are in my constant prayers.

Stamps, magic and miracles to you my friend!
Chris

02-08-2012, 02:34 PM	#11
chrisy Senior Member Join Date: Sep 2005 Location: Central Coast, CA Posts: 3,207	Re: New Plan, New Chapter for progression Sheila, Well yes, get that next 10 year plan in place! I know you've been waiting so long just to get answers about what's going on, so you could know what you're dealing with. You were correct in your guesses - and now you can move forward. There is good news in there tho. Good news that systemically things are still under control. Good news that you can now blast the local crap and get some relief. Good news, I think, that you can take a break from the Gemzar and hopefully regain your strength (and some of those darned "counts") or at least hold your own with the rigors of radiation. I REALLY like the idea of getting a place to stay up there. I know you hate being away from your family - they are so much your lifeline - but to do that commute daily in the winter sounds nasty, especially if you are not feeling well. I assume there is public transportation to Rush, so there might be many options. With gas, wear and tear on your car, you might not be that much more out of pocket. You know you would be welcome at my sister's house, but the Yorkie (and moody 15 year old!) might just push you over the edge! Let me know if I can help you in any way. You know you are in my constant prayers. Stamps, magic and miracles to you my friend! Chris __________________ Chris in Scotts Valley June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?" 9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++ 10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response! 04/05 - 4/07 Herception every 3 wks, Continue NED 04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial 06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin 01/08 Progression in liver 02/08 Begin (TDM1) trial 08/08 NED! It's Working! Continue on TDM1 02/09 Continue NED 02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED 12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver 07/11 - 11/11 Herceptin/Xeloda -not working:( 12/11 Begin MM302 Phase I trial - bust:( 03/12 3rd times the charm? AKT trial 5/12 Scan shows reduction! 7/12 More reduction!!!! 8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!) 9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3 11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc 11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go. 2/13 Gemzar/Carbo/Herceptin - no go. 3/13 TACE procedure Last edited by chrisy; 02-08-2012 at 02:37 PM..