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Juls · 12-15-2016, 07:23 AM

I also was not told I was triple positive. Told invasive Her2+. Eventually found out I was high Er+ & PR+. Put on Letrozole (Femara) just after chemo finished. Joint stiffness was the worst side effect. Taken off Letrozole last December when bone met found. Stiffness went away within a few weeks so know it was letrozole causing it.
Have been on Xeloda since Dec 15 but I am concerned that this is not enough when high PR+. Oncologist said she would maybe put me back on an AI later but can't give with Xeloda. Anyone else been told this. I can't shake the feeling that I should be on an AI!

12-15-2016, 07:23 AM	#12
Juls Senior Member Join Date: Mar 2014 Location: UK Posts: 563	Re: Effectiveness of Estrogen blockers I also was not told I was triple positive. Told invasive Her2+. Eventually found out I was high Er+ & PR+. Put on Letrozole (Femara) just after chemo finished. Joint stiffness was the worst side effect. Taken off Letrozole last December when bone met found. Stiffness went away within a few weeks so know it was letrozole causing it. Have been on Xeloda since Dec 15 but I am concerned that this is not enough when high PR+. Oncologist said she would maybe put me back on an AI later but can't give with Xeloda. Anyone else been told this. I can't shake the feeling that I should be on an AI!