HER2 Support Group Forums - View Single Post - Insurance Company Does Not Want to approve TYKERB

chrisy · 10-07-2009, 04:37 PM

You're right - your doctor should be making the decision! Assuming she has a rationale for this combo (which I know she does), can she help with providing this, along with whatever data there is supporting this.

maybe Flori or some of the others on this combo can give you some additional ammo as well.

To start, could you get the Tykerb with Xeloda while you're pushing for the Herceptin as well? Even though Tykerb/Herceptin failed you, you may still get some synergy with Xeloda. Think of it as swapping out the Herceptin piece?

Keep pushing for the combo, but you shouldn't be naked. Here's a couple of links that may help support your case.

http://professional.cancerconsultant....aspx?id=42119

http://kinasecentral.wordpress.com/2...-increase-pfs/

10-07-2009, 04:37 PM	#13
chrisy Senior Member Join Date: Sep 2005 Location: Central Coast, CA Posts: 3,207	Re: Insurance Company Does Not Want to approve TYKERB You're right - your doctor should be making the decision! Assuming she has a rationale for this combo (which I know she does), can she help with providing this, along with whatever data there is supporting this. maybe Flori or some of the others on this combo can give you some additional ammo as well. To start, could you get the Tykerb with Xeloda while you're pushing for the Herceptin as well? Even though Tykerb/Herceptin failed you, you may still get some synergy with Xeloda. Think of it as swapping out the Herceptin piece? Keep pushing for the combo, but you shouldn't be naked. Here's a couple of links that may help support your case. http://professional.cancerconsultant....aspx?id=42119 http://kinasecentral.wordpress.com/2...-increase-pfs/ __________________ Chris in Scotts Valley June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?" 9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++ 10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response! 04/05 - 4/07 Herception every 3 wks, Continue NED 04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial 06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin 01/08 Progression in liver 02/08 Begin (TDM1) trial 08/08 NED! It's Working! Continue on TDM1 02/09 Continue NED 02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED 12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver 07/11 - 11/11 Herceptin/Xeloda -not working:( 12/11 Begin MM302 Phase I trial - bust:( 03/12 3rd times the charm? AKT trial 5/12 Scan shows reduction! 7/12 More reduction!!!! 8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!) 9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3 11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc 11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go. 2/13 Gemzar/Carbo/Herceptin - no go. 3/13 TACE procedure Last edited by chrisy; 10-07-2009 at 04:44 PM..