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StephN · 01-25-2014, 11:17 PM

Hi Kelly -

I am sure my neuropathy is from the early rounds of taxotere and the 28 weekly taxol and navelbine I had for mets. It never got worse while maintaining on Herceptin alone for all those years.

I did use L-glutamine while on the 28 rounds, so that may have helped me then. Do not know if it will halp after the fact - when you are not on treatment.

In 2012 I blew a disk and lived on several doses of gabapentin daily for almost a year. Last fall I switched to a low dose of Lyrica and that is for my long nerve that foes from spine down my left leg. Lyrica is much more expensive, but the gabapentin was fogging me up and losing its effect on my nerve.

A good PT should be able to help you. Best of luck!

01-25-2014, 11:17 PM	#29
StephN Senior Member Join Date: Nov 2004 Location: Misty woods of WA State Posts: 4,128	Re: How long Should I continue herceptin ? Hi Kelly - I am sure my neuropathy is from the early rounds of taxotere and the 28 weekly taxol and navelbine I had for mets. It never got worse while maintaining on Herceptin alone for all those years. I did use L-glutamine while on the 28 rounds, so that may have helped me then. Do not know if it will halp after the fact - when you are not on treatment. In 2012 I blew a disk and lived on several doses of gabapentin daily for almost a year. Last fall I switched to a low dose of Lyrica and that is for my long nerve that foes from spine down my left leg. Lyrica is much more expensive, but the gabapentin was fogging me up and losing its effect on my nerve. A good PT should be able to help you. Best of luck! __________________ "When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau Live in the moment. MY STORY SO FAR ~~~~ Found suspicious lump 9/2000 Lumpectomy, then node dissection and port placement Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR - Adriamycin 12 weekly, taxotere 4 rounds 36 rads - very little burning 3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED! 2003 & 2004 no active disease - 3 weekly Herceptin + Zometa Jan 2005 two mets to brain - Gamma Knife on Jan 18 All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying Continue as NED while on Herceptin & quarterly Zometa Fall-2006 - off Zometa - watching one small brain spot (scar?) 2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava 2008 - Brain and body still NED! Port removed and scans in Dec. Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011 STILL NED everywhere in Feb 2014 - on wing & prayer 7/14 - Started twice yearly Zometa for my bones Jan. 2015 checkup still shows NED 2015 Neuropathy in feet - otherwise all OK - still NED. Same news for 2016 and all of 2017. Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.