Thread: All stage 3ers
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Old 12-20-2006, 06:05 PM   #13
michele u
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Join Date: Nov 2004
Location: Henderson, NE
Posts: 413
Jen,

I know what you are saying "if i can only get to 3 years" believe me, i hit 3 years and thought "only if i could get to 5". I don't think that never goes away!
My onc emailed me back, and he thinks what they were saying that if 75% stage 3 recure then they could cure 25%. I'm going to see him next and taking the book and showing it to him. I really don't think they will do early Tykerb studies with us Hereptin gals. Only because they come from 2 different drug companies, and Tykerb maker want the Herceptin market. that means they want to prove that Tykerb will work instead of Herceptin early. That's why our best bet is to beg for it off label. Being a oral med, i'm hoping most of our onc. will agree.
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Michele Ulmer

dx: August 2003 stage 3b 35 pos nodes ER/PR neg Her+
4 AC 12 weekly taxol
one year Herceptin in trial
35 rad tx
vaccine trial Seattle
NED
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