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Old 11-24-2014, 07:05 PM   #34
Cannon
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Join Date: Oct 2007
Posts: 203
Re: Thyroid cancer after BC anyone?

Hi Sassy,
Not sure where you are with this right now. I had thyroid cancer 2 years before breast cancer dx. My biopsies were all negative but endocrinologist said he didn't like the looks of it and wanted it out anyway. Had it removed and tho surgeon was 90% sure there was nothing, pathology came back positive. I was told that one could have 20 negative biopsies and still have thyroid cancer, so if you feel like you might as well have it out, I would support that idea. The surgery itself is relatively easy, the treatment is much easier than chemo or radiation, and many people live much of their lives without their thyroid. Having thyroid removed does NOT require parathyroids to be removed also, unless they are involved obviously. Due to my experience, my sister followed up with her doctor and was found to have thyroid cancer 1 year after me (she is 4 years younger). Feel free to contact me with questions.
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Dx 8/06 Age 43 Stage IIIA multifocal throughout breast, largest tumor 5 cm, grade 3, comedo, ER+PR+HER+++
Neoadjuvant A/C 4X Dose Dense
11/06 Bilateral Mastectomy (no choice on the right, my choice on the left)
Taxol+Herceptin weekly x12, continuing with Herceptin, finished one year in 12/07
33 Rads
Femara for 5+ years, staying on (started with Arimidex, switched after about a month, much happier)
Abnormal brain MRI shows no cancer, but "extensive white matter diease" - unknown cause
BRCA negative - lots of cancer in my family
survivor of thyroid cancer
also have Crohn's disease
CT and bone scan say NED as of 5/13
dx with severe cardiomyopathy 5/12 (likely due to chemo and Herceptin), ejection fraction in low 20's, now up to 40, went to 50, latest read 12/13 is back down to 35
1/13 Acute pancreatitis - are you kidding me?
9/13 started Humira for Crohn's. starting to have some energy again
B12 and Vit D both needed supplementation
Cataracts in both eyes noted 6/12 - surgery in the next 2-4 years?
4/14 Kidney stones/blockage/infection - related to Crohn's Disease
5/14 My aunt passed away - she was diagnosed after I was with Stage I - not Her2+, then Stage 4 for about one year
6/14 Scans - still NED, thank God. However, broken rib (I didn't notice) lots of bone degeneration osteopenia/osteoporosis. I also still have cardiomyopathy secondary to chemo.
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