[ElaineM]

Doctors and scientists conduct their clinical trials. They tell us how we are supposed to feel and which side effects we will experience based upon the results of the trials. Well, the brave people who participate in trials have to meet very strict criteria while they are in the trials. The drugs get approved after that. Doctors start prescribing those drugs to people all over the world who are different and unique. We usually have the same organs, but our bodies all behave differently under the same circumstances. We don't have to meet the same criteria as the people in the trials. We may have totally different experiences with the drugs than the people who participated in the trials.
Doctors sometimes don't realize this and are sometimes caught by surprise when their patients start asking about other side effects that are not on the list of possible side effects. Doctors need to expect the unexpected. We are allowed to get side effects that are not on the list !! The good thing is that there are sites with great people like we have here who can share their experiences. That alone makes us feel a little better. Sometimes we can help each other figure out how to cope during the not so good days.