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Old 06-15-2007, 07:23 PM   #1
Chelee
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Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
2nd opinion says no to staying on herceptin.

I *finally* got my 2nd opinion to see about staying on herceptin to complete two years. My current onc delayed my 2nd opinion and same as defeated my purpose by putting off my visit by 3 months! But I guess it makes no difference now since my 2nd opinion seems to agree. She mentioned the HERA & FinHer trials and we all know about those. So since no one really knows if one or two yrs is better....or even less...the 2nd opinion onc suggest I pull my port and move on.

Since I could not have radiation I would of still felt better staying on herceptin to finish out the 2nd year. My last two ECHO'S were 69% and 70%. Who knows what's best at this point...but I guess I won't be continuing. I'm a bit disappointed even if it turns out that they are right.

Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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