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Re: Gamma Knife A Success but more brain mets
Hi Courtney.
I am glad the Gamma zapped all the lesions and you are working to prevent future mets. I like Brenda's suggestion. I just went to see Dr. Ian Krop (a HER2 expert) at Dana Farber ) who works closely with Dr. Winer and Dr. Lin about a clinical trials for necrosis and tumor progression (glad that’s not you). He mentioned there were several new trials coming. It might be worth a phone call. The other person I would consider an email to is Musa Mayer. She manages the BCMets web site http://www.brainmetsbc.org/ and gave me Drs. at Dana Farber and Memorial Sloan who specialize in brain mets. I sent an email at the site mailbox . Wishing that you find the right treatment to keep the mets from coming back.
Love & Hugs,
Kris……..
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06/08/09 - 55, IDC, IIIA, ER+/PR-/HER+++
Nottingham 6/9 - Grade 2 5.2cm, several nodes
06/23/09 - Neoadjuvant - TCH Herceptin til June
10/07/09 - Finished Chemo
10/27/09 - Mastectomy RB
Path Report: RB No residual tumor pCR,
2 of 15 pos - .5mm largest micromets
12/18/09 - Radiation started (28)
02/05/10 - Finished Radiation
01/11/10 - Started Femara
06/22/10 - Finished Herceptin.. My son's 22nd BD. Hope it's a sign! Hoping for the best.
11/15/10 - Started Walter Reed BC Vaccine trial at
1/04/11 - Sibley Mem. Had to withdraw due to met
01/23/11 - Stage IV - Brain Met 1.6cm 1.7cm
02/03/11 - Gamma Knife (2 fracts to minmize necrosis)
03/01/11 - Gamma Knife
6/11 - Necrosis
7/11 - Necrosis stopped & Tumor progression
8/11 = Now think it's really necrosis
9/11 - Avastin every two weeks -- It's working!! Necrosis is shrinking.
12/11 - Necrosis gone AVASTIN worked.
12/11 - Bone &CT found
Oct '10 - Ran Hartford 1/2 Marathon to Thank Dr. Slamon for Herceptin!
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