[forher]

Hi Lani,
I have no systemic disease (I hope I am using the term correctly) according to all my PET/CT. I just wonder if there is anyone else out there like me. I am still stage IV and it might not make any difference, but I still wonder if I have small mets in my body that has not been detected yet. I had neoadjuvant therapy and then a BMX. According to my onc and the reports, all the cancer is gone (except for brain metastases which showed up about 15 months after I was initially diagnosed).
I am now even more concerned after reading your post: '\"It seems it is even more prone to metastasize to the brain when treated with herceptin (it was thought that it was only that patients lived longer while on herceptin so they lived long enough to get the brain mets, but mathematically it seems more than that)"
I am on Herceptin only now, and my onc doesn't even feel like I should be getting it (I restarted in Jan 2015). I told her I wanted to control my sytemic disease in case it was there. Her response was, "You don't have sytsemic disease." I'm so confused. Am I over-treating?
I really appreciate the replies and a chance to think out loud here.