HER2 Support Group Forums - View Single Post - Ovarian cramping. On tamoxifen and Herceptin. Prone to O cysts

Cathya · 06-09-2016, 03:23 PM

Hi;

I also had triple positive BC. Diagnosed the end of 2004, apart from all else I began arimidex mid year following AC/Taxol and radiation. Took it for 7 years. Following a small bleed it was discovered I had a large mass only a small amount being cancerous....stage 1c ovarian cancer. I have had genetic testing to discover I have a BRCA 1 VUS. Given your age I would wonder about genetic testing. I was originally told that my kind of BC would not likely spread to my ovaries and have indeed been told that this is not a spread but rather a new cancer. It also took from 2005 to 2015 to occur. I had no symptoms of the ovarian cancer although the mass was large. I would certainly recommend that everyone have the CA125 test at least annually so that any change over time can be monitored. You might have to pay for it but it is well worth the cost. A recent report indicated that trends of this test even within the normal range can be indicative of ovarian cancer.

Best regards,

Cathy

06-09-2016, 03:23 PM	#4
Cathya Senior Member Join Date: Sep 2005 Location: Ontario, Canada Posts: 752	Re: Ovarian cramping. On tamoxifen and Herceptin. Prone to O cysts Hi; I also had triple positive BC. Diagnosed the end of 2004, apart from all else I began arimidex mid year following AC/Taxol and radiation. Took it for 7 years. Following a small bleed it was discovered I had a large mass only a small amount being cancerous....stage 1c ovarian cancer. I have had genetic testing to discover I have a BRCA 1 VUS. Given your age I would wonder about genetic testing. I was originally told that my kind of BC would not likely spread to my ovaries and have indeed been told that this is not a spread but rather a new cancer. It also took from 2005 to 2015 to occur. I had no symptoms of the ovarian cancer although the mass was large. I would certainly recommend that everyone have the CA125 test at least annually so that any change over time can be monitored. You might have to pay for it but it is well worth the cost. A recent report indicated that trends of this test even within the normal range can be indicative of ovarian cancer. Best regards, Cathy __________________ Cathy Diagnosed Oct. 2004 3 cm ductal, lumpectomy Nov. 2004 Diagnosed Jan. 2005 tumor in supraclavicular node Stage 3c, Grade 3, ER/PR+, Her2++ 4 AC, 4 Taxol, Radiation, Arimidex, Actonel Herceptin for 9 months until Muga dropped and heart enlarged Restarting herceptin weekly after 4 months off Stopped herceptin after four weekly treatments....score dropped to 41 Finished 6 years Arimidex May 2015 diagnosed with ovarian cancer Stage 1C started 6 treatments of carboplatin/taxol Genetic testing show BRCA1 VUS Nice! My hair came back really curly. Hope it lasts lol. Well it didn't but I liked it so I'm now a perm lady 29 March 2018 Lung biopsy following chest CT showing tumours in pleura of left lung, waiting for results to the question bc or ovarian April 20, 2018 BC mets confirmed, ER/PR+ now Her2- Questions about the possibility of ovarian spread and mets to bones so will be tested and monitored for these. To begin new drug Palbociclib (Ibrance) along with Letrozole May, 2018. Genetic testing of ovarian tumour and this new lung met will take months. To see geneticist to be retested for BRCA this week....still BRCA VUS CA125 has declined from 359 to 12 as of Aug.23/18