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My Copay is a 100%!
Joy, Brenda and all of you brave Warriors,
Lolly's plan to write to her congressman and senator is great! And to the Insurance companies.
Maybe we could get a campaign going to have letters arrive from 50 states (dream big) to the New York Times and other national papers, TV news channels etc. on the same day!
We could get Elizabeth Edwards involved her cancer is HER2 neg but that should not be a problem. (My daughter knows her daughter).
We should get it nicely planned! Imagine all of the other women who have the same problem as we do and are not even in our HER2 support group.
That was me a month or so ago.
Luckily(?) our income is so low at the moment that I was approved for both Tykerb and Xeloda to get it free, but if I had to rely on my insurance I would have absolutely no help.
Best wishes to you all!
Odette
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May 18, 2006 Age 52,
Diagnosed infiltrating ductal carcinoma
er/pr- HER2 + 3.9 by FISH
June-August 2006 AC chemo
August-October 2006 Taxotere + Herceptin
November 18, 2006 Mastectomy 16 involved lymph nodes
Jan 2, 2007 start radiation
Stage IV, Jan 12, 2007 recurrence in cervical lymph nodes while on Herceptin, stopped Herceptin
Rad oncologist extended the radiation field, good response
Started Tykerb Xeloda on beginning of May 2007
Progression to lungs and conglomerate lymphadenopathy July 2007
Undecided about next treatment
'One does not get to choose one's adventures'
I'm experimenting with my diet, using green tea, flax seed curry and olive oil
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