HER2 Support Group Forums - View Single Post - MARIE

Believe51 · 06-14-2009, 01:37 PM

You know it Elaine. And by the way, I rambled so much that I forgot to answer you. These mets are seeded everywhere and will soon to pose issues. Time is of importance because it is working against us at the moment.

I have started him on my favorite drug (not~Wink), Decadron, to keep brain swell down. I think it is important to keep an eye on the worse mets and know their areas so I will be aware of what side effects will affect him. He has had previous mets in areas that would cause paralysis and such. I am worried about the last freedom Ed has, driving.

If you look at him now, one would say he looks great. Of course he looks great, he is still full of fight and hope, energy is good and all pain managed as good as it can be. Appetite is better but weight cannot be gained and very hard to maintain.

We are gearing up for the fight of our lives. You all are keeping my hope alive and inspiration flowing.......my greatest thanks.>>Believe51

06-14-2009, 01:37 PM	#10
Believe51 Senior Member Join Date: Jun 2007 Location: RHODE ISLAND (Ed getting me a latte on 2nd Cancerversary Cruise 2008) 'BELIEVE': To accept as true or real, To have faith in, To presume ALWAYS BELIEVE Posts: 2,999	You know it Elaine. And by the way, I rambled so much that I forgot to answer you. These mets are seeded everywhere and will soon to pose issues. Time is of importance because it is working against us at the moment. I have started him on my favorite drug (not~Wink), Decadron, to keep brain swell down. I think it is important to keep an eye on the worse mets and know their areas so I will be aware of what side effects will affect him. He has had previous mets in areas that would cause paralysis and such. I am worried about the last freedom Ed has, driving. If you look at him now, one would say he looks great. Of course he looks great, he is still full of fight and hope, energy is good and all pain managed as good as it can be. Appetite is better but weight cannot be gained and very hard to maintain. We are gearing up for the fight of our lives. You all are keeping my hope alive and inspiration flowing.......my greatest thanks.>>Believe51 __________________ 9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI 6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression 10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement, NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5 12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!