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Joannie · 12-05-2007, 05:56 PM

I am on the TEACH trial since May. It is Tykerb alone. I believe that I have the real thing vs placebo. I have had the following side effects:

diarrhea first 3 months
mouth sores in first two weeks
tingling hands/feet during first month
problem with ingrown toenail but not sure if it's related to Tykerb
some rapid heart palpitations but only for a couple of weeks. Echo shows normal every 3 months.
No noticeable fatigue
Light nausea in the beginning
Terrible acne/whiteheads for first three months; it has since subsided.

For me it has been quite tolerable. I have little or no trouble with the diarrhea at this time. The acne was pretty bad for quite some time. I went on antibiotics for the ingrown toenail and right after that the acne cleared up. Hasn't come back.

That's what I know for now! Hope it helps!

12-05-2007, 05:56 PM	#16
Joannie Senior Member Join Date: Oct 2005 Location: Beavercreek, Ohio Posts: 67	I am on the TEACH trial since May. It is Tykerb alone. I believe that I have the real thing vs placebo. I have had the following side effects: diarrhea first 3 months mouth sores in first two weeks tingling hands/feet during first month problem with ingrown toenail but not sure if it's related to Tykerb some rapid heart palpitations but only for a couple of weeks. Echo shows normal every 3 months. No noticeable fatigue Light nausea in the beginning Terrible acne/whiteheads for first three months; it has since subsided. For me it has been quite tolerable. I have little or no trouble with the diarrhea at this time. The acne was pretty bad for quite some time. I went on antibiotics for the ingrown toenail and right after that the acne cleared up. Hasn't come back. That's what I know for now! Hope it helps! __________________ Joannie Diagnosed April 2003 3.3 cm tumor left breast HER2 positive 3++ ER/PR negative Masectomy April 2003 4 Rounds of AC - dose dense 4 Rounds of Taxol - dose dense Removed right breast prophalactically Full reconstruction with implants/nipples No Late Herceptin Received Started Tykerb TEACH Trial in May 2007 Completed Tykerb TEACH Trial in May 2008 5 year NED August 27, 2008!!!