HER2 Support Group Forums - View Single Post - What can we do about the delay of TDM-1

Rich66 · 09-05-2010, 12:08 PM

Brenda,
I like your ideas on identifying larger entities/avenues to force the message through.
Another powerful avenue might be news organizations. We saw how media picked up on Herceptin years ago. Regardless of political spectrum, health care issues are hot now in terms of getting viewership or readers. Getting a few TDM1 success story patients in front of cameras..maybe picketing in front of FDA headquarters with a media notification could be powerful. I see some of that with Avastin now.

Regarding google searching, I think having forum topics searchable enhances information access. If concerned over privacy, maybe it means being more discreet with names and e-mails in profiles.

09-05-2010, 12:08 PM	#15
Rich66 Senior Member Join Date: Feb 2008 Location: South East Wisconsin Posts: 3,431	Re: What can we do about the delay of TDM-1 Brenda, I like your ideas on identifying larger entities/avenues to force the message through. Another powerful avenue might be news organizations. We saw how media picked up on Herceptin years ago. Regardless of political spectrum, health care issues are hot now in terms of getting viewership or readers. Getting a few TDM1 success story patients in front of cameras..maybe picketing in front of FDA headquarters with a media notification could be powerful. I see some of that with Avastin now. Regarding google searching, I think having forum topics searchable enhances information access. If concerned over privacy, maybe it means being more discreet with names and e-mails in profiles. __________________ Mom's treatment history (link)