HER2 Support Group Forums - View Single Post - Sisters with Mets...should I stop Herceptin?

KristinSchwick · 09-28-2011, 01:10 PM

Kim and everyone else on the board,
Thanks so much for posting. It gives me so much to look forward to, I am almost in tears. I too am stage IV and want more than anything else in the world to become NED, and one day stop treatment so I can expand my family, as I am only 30. Kim, please stay in touch with the boards so we can all continue to hear your journey when and if you stop herceptin. My oncologist, like yours, says that after an extended time of NED, it is okay to stop treatment. I have nothing else to offer except that......the more women that take that scary jump and get off herceptin or what ever treatment..... the more doctor's will learn and hopefully one day millions of women will be able to avoid excessive treatments after becoming NED.

Not to take the decision out of your hands or to belittle your own judgement.... just something to think about. Even though its not a clinical trial (to end treatment) its still an important clinical question to answer..... how long.

09-28-2011, 01:10 PM	#39
KristinSchwick Senior Member Join Date: Jun 2011 Location: Iowa Posts: 231	Re: Sisters with Mets...should I stop Herceptin? Kim and everyone else on the board, Thanks so much for posting. It gives me so much to look forward to, I am almost in tears. I too am stage IV and want more than anything else in the world to become NED, and one day stop treatment so I can expand my family, as I am only 30. Kim, please stay in touch with the boards so we can all continue to hear your journey when and if you stop herceptin. My oncologist, like yours, says that after an extended time of NED, it is okay to stop treatment. I have nothing else to offer except that......the more women that take that scary jump and get off herceptin or what ever treatment..... the more doctor's will learn and hopefully one day millions of women will be able to avoid excessive treatments after becoming NED. Not to take the decision out of your hands or to belittle your own judgement.... just something to think about. Even though its not a clinical trial (to end treatment) its still an important clinical question to answer..... how long. __________________ [B]Kristin Aug 2010: diagnosed stage 3b, 4 mo. after birth of son. 29 yrs old and breastfeeding, ER/PR-, Her-2+ started Neoadjuvant therapy: 4x FEC, 10x abraxane & Herceptin Feb 2011: L mx with recon. Path. showed only DCIS but 4/10+ nodes. March 2011: 6 wks rads. Mother passed, lower back pain. Late May 2011: Bone mets but organs clear; Tykerb, Xeloda, Xgeva. Stopped Herceptin. Implant infected: removed implant. October 2011: Bone progression; Gemzar and Carboplatin & restarted Herceptin. Jan 2012: Progression, re-classified as ER+; Tykerb, Herceptin, Zoladex & Femara. Anti-E is working! May 2012: ovaries out, markers stable but elevated. Cont. Herceptin, Tykerb, Xgeva & Femara. Dec 2012: aromasin Jan 2013: faslodex, herceptin, tykerb Jun: Kadcyla Aug: Rads to hip, then Perjeta, Herceptin & Taxotere Nov 2013: Perjeta, Herceptin, Halaven Early 2014: Affinitor, Aromasin, Perjeta, Herceptin. June 2014: Estradiol, Perjeta, Herceptin Aug 14: Tamoxofin, H & P http://kristin-notdying-blog.blogspot.com/