HER2 Support Group Forums - View Single Post - Opinions welcome-- do I get a fourth opinion on hormonal treatments?

panicked911 · 05-13-2006, 02:20 PM

Hi Jen:

Like you I am at Sloan and highly triple positive (er, pr, Her2) interestingly my onc immediately switched me to AI from Tomaxifen which the surgeon had started me on right after my lumpectomy on 10/5.

I know tomaxifen was working - I could feel it - breats were much less dense, ent down a full cup size etc within three weeks of starting it. Amazigly i felt great on it as well - all the achs and pains were gone and my energy level shot up.

Yet once I started herceptain and began lupron shots I was switched to Arimidex - bam - the aches and pains were pack, energy level plumeted . Asked to be switxched back to Tomaxfen and was told not now - neeed to stay withthe arimidex or another AI much less riskier.

So here I am now trudging along - steps are a nightmare b/c of the pai in the knee joints and if i sit to long in one place i "stiffen up" - despite all of this - still believe small price to pay .... I was diagnosised at stage 1 and am determined to remain there .....

05-13-2006, 02:20 PM	#10
panicked911 Senior Member Join Date: Oct 2005 Posts: 115	4th opinion on hormonal treatment Hi Jen: Like you I am at Sloan and highly triple positive (er, pr, Her2) interestingly my onc immediately switched me to AI from Tomaxifen which the surgeon had started me on right after my lumpectomy on 10/5. I know tomaxifen was working - I could feel it - breats were much less dense, ent down a full cup size etc within three weeks of starting it. Amazigly i felt great on it as well - all the achs and pains were gone and my energy level shot up. Yet once I started herceptain and began lupron shots I was switched to Arimidex - bam - the aches and pains were pack, energy level plumeted . Asked to be switxched back to Tomaxfen and was told not now - neeed to stay withthe arimidex or another AI much less riskier. So here I am now trudging along - steps are a nightmare b/c of the pai in the knee joints and if i sit to long in one place i "stiffen up" - despite all of this - still believe small price to pay .... I was diagnosised at stage 1 and am determined to remain there .....