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Old 03-01-2011, 12:33 PM   #48
Sheila
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Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
Re: Looking forward~~~

Just returned from my oncologist appt. The CT scans show "STABLE" which considering my history, is like a miracle...most of the nodes in the medistinal and hilar area, and axillary now appear fibrotic, or as the Dr said, just dead areas ...the chemo aftermath. On the downer side, my counts were too low to get the chemo today...my white count was really low...so now Neupogen, which is a first for me in 8 years of treatment. The oncologist said that the drug Eribulen (Havalen) appears to be hard on the white counts on many people...some are on the Neupogen after the first round...so I must have health blood as this would have been round 5, (or is it 6)....it must make me lose track of time too. Somehow, I just know my dear friend Marianne who just lost her battle, is laughing her behind off at me...we always laughed about her counts being low, while mine remained normal....I almost flaunted it to her....she is paying me back from above!
The Dr. also said that everyone she has put on Eribulen (Halaven) is still doing well and responding..that is good news for all of us!
__________________
"Be kinder than necessary, for everyone you meet
is fighting some kind of battle."



Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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