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Old 07-13-2011, 04:06 PM   #1
Kim in DC
Senior Member
 
Join Date: Nov 2004
Posts: 190
Update on Me/New trial

Since my progression from TDM-1 in Dec(Sternum, soft tissue met in chest), I have been on Herceptin/Tykerb/Xeloda. In April I had rads to the chest and the latest scans show that it is healing. I still have one small spot in the liver that shows up on a ct but not pet/ct. It is not big enough to biopsy.

I have applied for a new trial ( NCT01148849, CP-MGAH22-01, Safety Study of MGAH22 in HER2-positive Carcinomas) and if all goes well I will start the last week in July. This drug is supposed to be the next generation Herceptin.

I got 2 years out of TDM-1 and that has kept me around to try something new. You Ladies (and Gents) have been such a blessing to me that I want to make sure I can return the favor.

Praying for us All
Kim
__________________
8/98 dx right breast
5/2003 tram flap right breast
8/2004 dx new primary left breast with inflammatory bc
er/pr-, her2neu+++
8/19 taxotere and herceptin
1/15/2005 Navelbine/Herceptin
4/2005 radiation and Herceptin
5/15/2005 Herceptin alone
2/12/2008 skin biopsy positive
2/14/2008 met to sternum, possibly right breast
2/27/08 Start omitarg, herceptin, taxotere trial
3/17/08 Kicked off trial because I started too close to my last herceptin
3/19 start tykerb xeloda
Right breast confirmed met
5/15/08 skin mets gone, no hypermetabolic activity in breast, sternum healing
8/24/08 scans still look good. sternum still active with scarring. No evidence of progression
10/08 Progression in sternum
12/08 Start TDM1 trial
1/09 Scans show stable
12/09 1 year on TDM1 still stable
10/10 progression in chest and liver
11/10 false positive of liver mets; tykerb and herceptin
4/11 Tykerb/Herceptin/Xgeva
4/11 Rads to Sternum
5/12/12 NED Herceptin/Zometa
3/16/19 still NED Herceptin/Zometa very 6months
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