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Old 10-12-2010, 03:51 PM   #30
CourtneyL
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Join Date: Aug 2008
Location: San Francisco
Posts: 260
Re: Courtney, how are you?

Thank you, thank you, thank you!

Yes, definitely check out the papers on Boswellia. There are some threads about it here too so check the search function and you can read about our past experiences with it as well. I think Brenda may have tried it too.

I had been taking Boswellia at a low dose since my brain mets diagnosis but I went off it once I started the vaccine trial in May. Then all of a sudden, I get hit with brain mets again. I start taking the Boswellia at super high doses three weeks ago (1800 mg x 3 daily) and all of a sudden there is shrinkage. I KNOW that it is not the Tykerb alone. I started taking Tykerb 3 weeks ago as well but this is my second dance with Tykerb. My brain mets progressed (albeit slowly) while on Tykerb previously.

Another explanation is the vaccine. I got my first booster shot in September.

I don't care what is shrinking them. I am just grateful something is. But yes, I would encourage anyone who is interested to check out the info on Boswellia. It can't hurt to take it.

And Steph, to answer your question - yes, I will get to continue on the trial! I'll be up two more times for vaccine booster shots, once on November 16th and again in January date TBD. Hope to see you again during one or both of my trips!
__________________
4/17/08: Dx Stage IV at age 30 - extensive mets to liver, lungs, and bones. Er/Pr-, Her2+++
April 08-Aug 08:Taxotere, Cytoxan, Herceptin, Zometa - complete response!
Sept 08-Dec 08: Herceptin +Zometa for maintenance.

Jan 09-April 09: Brain mets. Add Tykerb. Watch and wait.
April 09: Gamma Knife 10 brain mets, add Xeloda.
Sept 09: Gamma Knife to 1 brain met.
Nov 09- April 10: Lung progression, add Gemzar to Herceptin, Zometa.
May 10- Sept 10: HER2 Vaccine Trial

Sept 10: Add Tykerb for more brain mets.
Oct 10: Gamma Knife to 7 brain mets.
Dec 10: Switch from Zometa to Denosumab.
Jan 11: Gamma Knife to 3 brain mets.
March 11: Gemzar/Herceptin for lung/bone progression.
April 11: More brain mets - Intrathecal Herceptin
June 11: Ixempra/Herceptin for lung, soft tissue progression.
Aug 11: Gamma Knife
Sep 11: Abraxane/Herceptin
Future: NED

Send me a PM if you'd like to follow my journey on Caringbridge.
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