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Re: Managing Diarrhea
Hi Mtngrl -
I am also on the Herceptin/Perjeta combo, having dropped the taxol in late May. The big D is a struggle and was horrible at first, with the help of the nurses where I get treated, I worked out the following which is similar to yours:
Immodium: One daily in the AM right before breakfast. I take 2 the morning of an infusion and for a couple of days afterwards.
Food: I eat 3 meals with small snacks in between. No spicey food. Limit 1 cup of coffee daily, no other caffeine. (I really miss the coffee!). I also have fiber in my diet through whole grains.
Probiotics: I was doing good belly drinks, but I have switched to yogurt with live cultures about a month ago. This works well for me.
Exercise: daily walking 30 - 45 min. I am planning to start doing elliptical machines in the next couple of weeks - my onc just gave his approval and the area I live in is not conducive to the walks in the winter due to rain.
This works for me most of the time, but not 100 percent so I am very interested in others tips of the trade so to say... Thank you for starting this thread and to all that responded.
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2009: dcis rt side, mastectomy, no chem or rads
2009: rt recon implant.
Jan 2014: stage 4. pain right side, found "too many to individually account for" liver mets. Found right axilla lymph nodes and nearby mass (source). Lung, lymph and bone mets. Brain clear by MRI. Er and pr neg, HER2 +++
Feb 2014: herceptin, perjeta, taxol
July 2014: no active disease, only bone scars and 1 liver scar! Tumor markers all normal again.
Dec 2014: seizure, 3 brain mets (15, 5 and 3 mm)
Feb 2015: Linac Stereotactic Radiation for brain mets
June 2015: no new brain mets, old ones greatly reduced in size. Bod still no active disease
October 2015: New brain Met, zapped by Stereotactic rads, watching another spot
Jan 2016: The other spot grew, zapped again. Still on herceptin and perjeta every 3 weeks
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