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Barbara H. · 04-09-2011, 11:07 AM

HI Tricia,
I too, as others have so eloquently stated, feel that you are a incredible inspiration to both me and our members. Your posts impart such immeasurable wisdom that is comforting and hopeful. I was so sad to learn that your recent treatment has not worked and that you developed allergies. Although Tykerb does cause rashes at the beginning, the rash did not itch and eventually disappeared. It's too bad that you had to try it with Xeloda, because now you don't know which drug caused the reaction. Having side effects or allergies can be frustrating. That was the reason I had to finally give up TDM-1 in spite of the fact that it was working. TDM-1 is a drug that might work for you, but it is currently difficult to get. It is very tolerable. My heart goes out to you, and I hope that you will soon be treated with a drug that work. There are targeted drugs in the pipeline that at some point will be available to us. Continue to keep that fighting spirit alive. We all care for you so much.
Fondly,
Barbara H.

04-09-2011, 11:07 AM	#9
Barbara H. Senior Member Join Date: Sep 2005 Location: Newton, MA Posts: 951	Re: Another update on triciaK HI Tricia, I too, as others have so eloquently stated, feel that you are a incredible inspiration to both me and our members. Your posts impart such immeasurable wisdom that is comforting and hopeful. I was so sad to learn that your recent treatment has not worked and that you developed allergies. Although Tykerb does cause rashes at the beginning, the rash did not itch and eventually disappeared. It's too bad that you had to try it with Xeloda, because now you don't know which drug caused the reaction. Having side effects or allergies can be frustrating. That was the reason I had to finally give up TDM-1 in spite of the fact that it was working. TDM-1 is a drug that might work for you, but it is currently difficult to get. It is very tolerable. My heart goes out to you, and I hope that you will soon be treated with a drug that work. There are targeted drugs in the pipeline that at some point will be available to us. Continue to keep that fighting spirit alive. We all care for you so much. Fondly, Barbara H.