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Old 12-19-2014, 05:39 AM   #19
Lauriesh
Senior Member
 
Join Date: Oct 2005
Location: Lakeville, Minnesota
Posts: 199
Re: Asked why I am stage IV again - clearing up??

Well, if you are on disability I would not be in a hurry to get a second opinion and get reclassified as 3 c.
There are stage 4 women who are doing well who have had to fight with disability to keep it because SS has said that they are well enough to work. If you are reclassified as 3c, you could definitely be at risk of this happening if you don't have other major health issues.

I think if I was you, I would focus on getting to Ned. The concern is that your cancer came back relatively quickly. Hopefully, this combination works for you and can get you and keep you Ned.

Once you are for awhile , then you could tell your dr that the side effects are becoming too much and could you go to once a month.
After doing that for awhile, then ask if you can spread them out even more.
I do 5 doses a year now,but for at least the first 2 years of being Ned, I did 12 doses a year.
__________________
diagnosed stage 2- 3/2005
4.5 cm & 2+ nodes , er/pr- & HER2+
4 AC
12 taxol/Herceptin
Year of Herceptin
liver mets- July-2010
7 taxotere/Herceptin
RFA- Feb.2011
NED
U of Wa vaccine trial-oct 2011-Feb 2012
Herceptin/tykerb
Ned - 2 1/2 years
Herceptin & perjeta
Ned 3 years
Herceptin- reducing treatments , due to s/e, to 5-6 a year
NED- 3 1/2 years
Ned - 4 years
2/15- stopped herceptin - on no treatment
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