[linn65]

Gumby I had the year of herceptin alone for a year every 3 weeks and have had no treatment for a year until August 28, 2014 and now herceptin 415 mg and projecta 425 MG every 3 weeks. Are you Still getting treatment of herceptin being Ned and stage 3C?

I actually voice recorded my ONC and listed to it 3 times today. My sister asked her what stage she immediately said 4. And then repeated stage 4 two more times in the 36 minute conversation. Also, on my application for social security she wrote it down, and I was approved for it in 5 weeks of filling it out. Now, that being said I will not receive it until March for February because of a 5 month period social security makes you wait. And I received accelerated benefits for my life insurance.

The only thing after listening to her talk is she said we did not find more extensive Desease or whole lots of stuff.....I don't know what I am missing. But to me I guess stage 3C vs Stage 4 if the same treatment path why stage it at all??

Oh And I was never really staged In July of 2012 because of preadjunctive therapy, and I was told it couldn't be staged because of receiving that.

I always seem to have more questions then answers. I suppose if it's regional reoccurance and stage 3C then why would I have to be having treatment with no end game. It was on this board I saw someone wrote they changed there treatment after 6 years of I think herceptin they got to change it to only 6 times a year. I of course asked the doctor when can I maybe do that and not every 3 weeks.

I still have the same question 3C or 4 do you still have a terminal disease or incurable the exact words my doctor used hoping to become NED or stable without IV infusion treatment??
Maybe there isn't a concrete answer and 3C you still have the same treatment IV infusion for life until maybe just maybe they can have a complete cure for the crappy cancer which I hate!!!