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Old 01-07-2015, 05:24 PM   #2
Lauriesh
Senior Member
 
Join Date: Oct 2005
Location: Lakeville, Minnesota
Posts: 199
Re: Recommended: regular brain MRIs for all HER2+ patients

I think it is going to be very hard to convince your onc to give you MRI 's without symptoms.
I have stage 4, and my onc won't order brain MRI's unless I have symptoms . And from reading on here and other sites, I have seen very few stage 4 her2+ patients who routinely get brain MRI 's ( unless they already have brain mets)
I have 1 -2 brain mri's a year because I tell my onc I have symptoms- headaches, dizziness, nausea, etc. I am sure by now he knows I am probably making up some of my symptoms, but as long as he can write something down to submit to the ins, he seems fine with it.
Instead of trying to convince him , I would occasionally tell him your having headaches, etc and insist you want it checked out.

Laurie
__________________
diagnosed stage 2- 3/2005
4.5 cm & 2+ nodes , er/pr- & HER2+
4 AC
12 taxol/Herceptin
Year of Herceptin
liver mets- July-2010
7 taxotere/Herceptin
RFA- Feb.2011
NED
U of Wa vaccine trial-oct 2011-Feb 2012
Herceptin/tykerb
Ned - 2 1/2 years
Herceptin & perjeta
Ned 3 years
Herceptin- reducing treatments , due to s/e, to 5-6 a year
NED- 3 1/2 years
Ned - 4 years
2/15- stopped herceptin - on no treatment
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