Re: Is this aa bad sign?
Thank you all for your replies. Am glad to hear that the effects eventually wear off when you come off the steroids. I just hope I get to a good enough place to be able to do without them.
Coolbreeze, I have been told I am stage 4 incurable but when I asked how long doc said he couldnt say as I was responding to treatment. Some days I feel good and enjoy it , other days I wonder is this the beginning of the end, when I feel bad.
I have always been very slim so I hate how I look now but my family say they just want to have me around so I must stop moaning. Its amazing that one 2mg dose of steroid makes me crave food all the time, I have to stop myself giving into the craving, it really tests my willpower.
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Delaney, dx 2008 lumpectomy,mastectomy,a/c,paxitaxol, tyverb 1 yr.
dx 2010 mets lymph nodes, skin, lung. start taxotere/herceptin.
Stopped taxtere/herceptin, now on tyverb/xeloda.
Lung mets shrinking.
Back on Herceptin with T/X. Partial response.
Skin mets progressing. Radiation scheduled mid february 2011.
Spot found on hip - radiation to hip beginning mid February 2011.
Now trying Gemzar/Tyverb/Herceptin and Zometa.
CT scan Feb 2011 - lung clear!
Brain mets (specks) - radiation mid Feb.
Brain Scan June'11 - Clear
CT Scan June'11 - Good - skin met active - watch and wait.
Surgery to remove skin met. Surgery to back 2012, four titanium rods inserted. Skin mets reappear. On Navelbine, not working. 4 week washout, start Myocet for skin and lung mets August 2012. Brain scan clear despte intermittent blurry vision (something hiding? Am suspicious but hopeful. )On we go, glad to be here.
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