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Is this aa bad sign?
I am stage 4 with mets to lung(zapped), brain(zapped), skin(active), bone(active). I am on herceptin and navelbine weekly. I take 1 steroid (2mg) daily. I have the round puffy face and I now look 6 months pregnant which I put down to the steroid.
I sat beside a lady yesterday who takes 10 steroids and she looks slim and normal.
Why do I turn into a roly poly barrel, is it a sign that I am near terminal now? Has this happened to anyone else? Is there something my oncologist is not telling me? She tells me I have outlived the time she thought I had.
If anyone has any info on steroids please pass it on and thanks in advance.
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Delaney, dx 2008 lumpectomy,mastectomy,a/c,paxitaxol, tyverb 1 yr.
dx 2010 mets lymph nodes, skin, lung. start taxotere/herceptin.
Stopped taxtere/herceptin, now on tyverb/xeloda.
Lung mets shrinking.
Back on Herceptin with T/X. Partial response.
Skin mets progressing. Radiation scheduled mid february 2011.
Spot found on hip - radiation to hip beginning mid February 2011.
Now trying Gemzar/Tyverb/Herceptin and Zometa.
CT scan Feb 2011 - lung clear!
Brain mets (specks) - radiation mid Feb.
Brain Scan June'11 - Clear
CT Scan June'11 - Good - skin met active - watch and wait.
Surgery to remove skin met. Surgery to back 2012, four titanium rods inserted. Skin mets reappear. On Navelbine, not working. 4 week washout, start Myocet for skin and lung mets August 2012. Brain scan clear despte intermittent blurry vision (something hiding? Am suspicious but hopeful. )On we go, glad to be here.
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